We had to leave at 5am ish. (!!) and woke at 4:50. You have never seen 9 kids wake, pee and get dressed and buckled so fast in your life. :) They are used to it. I had all clothing laid out which of course helped.
We were in the van at about 5:15 or so.
We arrived late as the pass was really quite stormy. We've been traveling all winter and this is the first time it's been bad.
The main concern with Zihao is his deafness and therefore speech. His palate is quite botchy but ... he's using it well. He says all the difficult sounds and letters that Azlan cannot say...proving the muscles are functioning in his palate. He does have a hole in it but they'll repair that later.
He has level 1 microtia (ear deformity) with one being smaller and lacking a fold. They will do an otoplasty when he is 6y.
The appt went great with no red flags. He does need kidney ultrasounds, spinal X-rays, hearing exams, eye tests and the whole works due to having Goldenhar.
In there, we got Taizi in to be weighed.
So. 5 months. 9.5kg.
He had his heart procedure and 10 days later...was weighted at 9.4kg (all on the same scale by the way).
Another 18 days later and he was ... 10.0!!! They were shocked!!!
He gained 600 g in 18 days. They said the normal for a healthy 3.5yo is 180 g in 30 days so not only is his nutrition content off the charts but now so is his gain! We aren't even connecting this to the PDA repair as they were shocked it was no gain after 10 days....this one we are giving 100% to prayer.
And now that we KNOW the weight gain, we can see it. True story. His hips have been plain and simple...bony. Well they are not. I cannot see the bones sticking out!
Besides medical update I want to update about Zihao. He's been doing so well. He really has a big piece of my heart. Every time he talks and says a word funny due to his cleft...I think I melt a little. And he sparkles.
Zihao and Mommy played this cute game in the doctor's office on the iPad. He was so cute. He had to get some people out of the train before he could let new "peoples" in. Well he didn't know to move them out so he started shoo'ing them with his hand and saying "GET OUT" I was laughing so hard. ;)
The other day, we stopped by to see a fence client and the man asked Dean if he could meet his "new children". So Dean got Zihao out. It was so wonderful to see the look of fear on his face as Dean took him out to meet this man. He clung to Dean and cuddled in his shoulder, refusing eye contact with the gentleman. Why is that so wonderful...? Ahhh. Because it's been 5 months of begging for the attention of every stranger and this time, he seemed scared that he was leaving us. Also while in Children's he was very cuddly with me when each doctor came in. Seeing signs of great, healthy attachment.
We stopped at a very cool waterfall on our way home. The kids loved it.
Azahria Peace looking at the falls :)
And we got home long before midnight! Bonus! ;)
Today, a box came from Amazon for Izrael's birthday. Oh she loved it. My sister sent the cutest outfit and toy purse filled with a cell phone, lipstick, credit card and other goodies.
Someone commented on how big she's getting. She IS big. She's just 2 and taller than Zihao who is almost 4. She wears 3t and 4t. She's fully potty trained except for at night and sleeps in her toddler bed. Oh...and I adore her!
In other important news: we have a new pediatrician. Yes. The last one that I love...sent us certified letter stating he would no longer be our doctor after the day I cried in his office. Lovely. Nothing like leaving us completely up a creek in the middle of non stop doctor appts and referrals. Well...it all worked out. I told this one the entire story and she said "hmmm. He is a very nice man...I'm glad to hear you say you loved him and were shocked by this. Here's what I have to say to you. I'm not a god. I don't have a god-complex. I won't know all the answers, but I'll refer you to someone who does. I love that doctor as well, he's a nice man. BUT. Don't ever argue with a mother's intuition and you ALWAYS have the right to a second opinion. I wouldn't have put that injection of steroids into my son's head without a second opinion either so KUDOS to you for standing up for your son." A humble "thank you" followed.
She's referring Azlan to our new team in Seattle which we are excited about. All 3 boys will be with the same team ( and we LOVE them).
I had a chiro appt today b/c ... well...hmmmm...I have a very high pain tolerance...and little will slow me down...but I'm in a 7 out of 10 pain at all times right now...due to my ribs. I went in and he said I had 3 ribs out. Really out. So out he doesn't know if he got them back in and on the ride home I confirmed he didn't. He also said "we probably won't get them back in until the baby arrives". No problem. That's only like 12-13 weeks from now. ;) I cried. And then decided this too...is a choice. All about expectation. I will not and cannot let this slow me down. I can handle the pain. I will handle the pain. And I'll take the prayers :)
I feel like this is such a vomit of words that don't go together at all. I do apologize. My brain is just spewing things out in no particular order tonight.
We saw our aunt and uncle a few days ago and they snapped this pic of us in their RV. Here we are. I look at this and get emotional. For God to take something and someone so broken. So flawed. So very ordinary. And make something so beautiful. 4 children from different parts of the globe...a family. You may see the skin color differences, but I assure you, they don't.
For the last day I cannot get a song out of my head. It's not how I feel right now...though I certainly do at times. But I have learned to share it because God is giving it to me for someone. The words are powerful. So many of you are feeling this for different reasons in your life. Take heart. Jesus has overcome. He already sees the end. Take heart.
Please click on the link and watch the music video with lyrics.