Friday, October 31, 2014

My Crossroads.

Every day in my life I'm faced with the question...

Do I surrender...?

What does surrender really look like?

Will there be any of me left...when it's all said and done?

Should there be any of me left...?

It's hard.  It's just plain hard.

Life with Taizi gets harder.  As he gets older...it gets harder.

The gap of where he should be ... and where he is...becomes increasingly obvious.

This is who he is. This is where he is.  And...it's hard.

While it looks like regression...it's not.  It's...actually...progression.

As his brain grows and develops...it learns and does new things just like a healthy 5 year old's does. Except...except...it's different.

It's not new and exciting to us. It's not things you cheer on as a parent.

The fact that he's learned to swallow air and burp...often...isn't the kind of progression we had in mind.

That he's hitting himself over..and over...and over again in the chest...to the point of bruising and even breaking the skin until he bleeds...no, not that either.

When he has to put his spoon down and take both hands and repeatedly hit himself in the head, over and over and over...before picking up his spoon and then doing it all over again...

It's not how we have always measured 'growth'...'development'...'progression'...

But the hard reality...is that it is. It is for Taizi.

As what is really happening inside his brain is revealed more and more as each new day dawns...the reality that this IS his progression hits.

And it's hard.

It's hard to embrace it. It's hard to like it.  And it feels near impossible to love it.

How...?

But...really...?

God saw ahead. He knew. No...we didn't know. But neither did we walk in blindly and make a huge mistake.  He knew. He called. We answered.

And more than ever before...in my entire lifetime...I'm constantly standing at the crossroads.  Surrender or Fight.

While Surrender may seem like the easy way out in your mind...trust me...fight is what is natural.  Fight...question...resist...go down kicking and screaming...that's my go-to.

Surrender...? That's against my grain.  And likely against yours.  I know. You don't have a Taizi.  But...you do.  We all do.  My Taizi just happens to be a very mentally disabled 5.5 year old boy.

What's yours?

Surrender isn't easy.  It feels more like a freefall off the cliff.  I'd rather hold on. Tight. Yes...even to the weakest branch of the weakest tree...than to let go.

Yet I know...

I know that the freedom is in the surrender.

Oh how many times does He have to show me...? The hands up...head high...surrender.  Not out of defeat. Surrender isn't about defeat.

Surrender is about winning.  It's about choosing not to fight.  Choosing not to struggle.  Choosing to let go.  Hands up.  Heart...perhaps trembling.  Letting Him fight for me.

Standing at the crossroads of Surrender and Fight...tonight...tonight I choose Surrender.



Thursday, October 9, 2014

Doing well.

Azlan is doing really well. Looks to be healing well, now done all medication.  His stitches still haven't dissolved (really hoping they actually used dissolvable...)  We have a follow up appt next week in Seattle.

Thank you for thinking of us.


We went out for ice cream this week, thanks to a sweet friend that sent a gift for us to do just that :) We always have complete strangers offer to take our pictures...and even if they don't know how to use my camera...we get pictures of us all together.