Monday, January 25, 2016

Oh...Azlan. My Azlan.

Today, I woke up with a light tap on my front door at 3:45am.  Yes. The miracle is that THAT woke me! :) My friend was at my door and I had just opened my eyes.  Ahh. 5 minutes later, Azlan and I were in her car headed to Seattle for 2.5 days.

We arrived shortly after 8am.

Cranio facials appts.  Then the dreaded dental.

My poor boy.  As he was getting the disgusting impressions of his teeth done, he was staring into my eyes...with total fear.  I was holding his hands...very close to his face...saying as courageously as I could "you can do hard things...we've got this" and then the vomit.  He vomited. Over...and over and over again. Probably 12 times. With the impression still in his mouth.  It was awful. He was crying. I was crying.  There was vomit everywhere. It ... was awful. When it came out he laid his head on my shoulder and we both cried.

It was such a small thing. But it was hard.  And every little hard thing that he has overcome is what has made him who he is today.


Getting a toy monkey made up for it :)


He thinks this surround X-ray is pretty awesome.



And then this.  The talk about this X-ray.  Now...the talk in all its detail will be a few weeks out when the team has had time to get together and go over every detail of this and tomorrow's sleep study results.

But.  

Here is his X-ray from Feb 2014:


And here is his X-ray from today.


Now I don't know what you see but I can tell you what I see has had me in or near tears all day.  Oh my beautiful Azlan Honor.  Looking at his top jaw and his bottom jaw...you can see how the underbite (which was "severe" in 2014...)is even greater today.

We were told by the team that there are about 4 surgical options.  The problem is, he is already too severe for options 1,2 and 3.

That leaves number 4.  Number four...let's be honest...is really tough.

We don't know (yet) when this will be scheduled. It will be based on a number of very important factors.  His breathing is getting more and more labored. His snoring s much louder at night.  His speech is getting even more difficult as he grows and the gap in his jaws grows.  And then there is his age.  We would rather do something severe and traumatic at 9-10yrs than 13-14yrs.  For many reasons.  We don't know WHEN it is...we just know this is what's in his future.  We wait to hear back from the craniofacial team as to when.

I know I haven't told you what option number 4 is.  But it's not pretty.  It's just...his only option.



That.

Yes it's visible externally. Yes it's something that's adjusted daily. Yes it's awful in so many ways. But...it's understood to be his only option.

Perhaps for the people you know..."cleft is only cosmetic". Please. Please don't ever say that to us.  We aren't hyper sensitive to the words you use...just saying for Azlan...his cleft was not "just a surgery" at 5 months and...TADA!  No...no.  It wasn't.  

Tonight...we are laying in our hotel room with our sweet friend who came on this trip with us.  Tomorrow he gets his sleep study done.  

Tonight we are all laying in our beds watching HGTV Tiny Houses and laughing so hard...hearing Azlan's sweet laugh beside me is the best medicine.  The...very best.  





Saturday, January 23, 2016

Feeling...heavy.

Today we got news from our adoption agency that ZhenAi does NOT know she is being adopted. They don't wish to tell her. On top of that...that in this particular province the children in foster homes are often brought to the orphanage for 1-2 weeks pre gotcha day to grieve there privately.

I have felt off....sick, actually..ever since.

I'm so thankful our agency feels the same way. They are begging that she be told and even shown pictures of our family.

In every 'human sense' this situation isn't good.  She's 12 years old. She needs to give consent to be adopted. Yet, they are dropping the news on her suddenly and ...

And then I remember.  In my deepest doubt...that this isn't our story.

Ridiculous faith.  Remember, Janice...?

My heart is heavy tonight.  Faith in the thick of questions and concerns.  The faith that you know for sure this is where God called you and this is your daughter. And yet...I'm human just like you.

Standing at yet another crossroads in my life.

The power of choice.  Which path do I choose? Oh the faith path is so tiny and wind-ey.  It's dimly lit.  If you can see further than your feet...it's no longer faith.  Ahhh...and yet I know.  I know that's the path where the beauty is.  That's the path where you get to see God's presence in your life like nothing you could imagine.

Easy...? Please don't let me be the one to make you think such.

No...no...it's not easy.  But as if laid in front of you as your foot is in mid-air...the pavement just suddenly appears. Just in time.  The path made fresh in front of each step. Just in time. You see there is indeed footing there. You will not fall.

Ah.  That's where I am.

And...I'm tired.  We are so close to being finished on the house.  It's all happening at the same time.  And I...? I humbly ask for you to pray for me...us...when you think of it.

And...if I'm to be completely honest...pray that God would just shine that light a little further down the path this time.

Pray for this beautiful girl. That she would know her family is coming.  And God would ready her heart for all that is to come.

**Update on the process, we have Article 5 pick up Feb 1. Expected gotcha date is Feb 29.**

Wednesday, January 13, 2016

"Can boys with cleft lips...whistle?"

We were sitting at the dinner table a few months ago.  Azlan had a big question.

He started kind of hesitant.  All eyes (and there are many at our table) were on him.

"So...I've been wondering something...it might seem like a silly question. But...it's a big one to me..."

He trailed off.

He has always spoken his mind.  He was two years old, NO ONE except me could understand his speech...and he would tell me if he did (and if he did not...) like my outfit :)  So what was the hesitation...?

"I've been wondering...if boys with cleft lips...can whistle?"

I could feel the lump in my throat.  I mean.  I got what this meant to him.

All of his siblings are learning to whistle and it's kind of cool, right?

He has a severe, severe underbite.  (We have a big appt next week to see when he needs a major jaw surgery b/c his underbite is so extreme it's affecting his breathing).

He has a category 3+ cleft lip and palate.

His mouth doesn't make the perfect circular motion. His teeth are a (beautiful) mess.

What do you say?

I'm a realist.  I never want to lead my child one direction and feel cheated that I painted something prettier than it is.  Or anyone else for that matter.

He said my hesitation and said "can you look it up on your computer?"

I smiled and said "No, Azlan. I don't think that's a good idea."

His eyes got big! "Why not??"

"Well...because what if I find that they cannot?"

He didn't miss a beat.  "I would love to know that because then...well then I'd stop trying!"

I smiled.  "See...that's exactly why I don't want to find out. Because what if...they can't. But...you try so hard for so long that you....well...you become the one who does!"

I can still see him processing. He was just staring at me and then that sparkle in his eyes.  That sparkle that he was born with. Yes. Yes...he was.  His eyes smiled so long BEFORE his mouth ever did that I was always able to capture those newborn photos because his eyes always told me the story.

"Mommy.  Are you serious?"

Yes.  Yes...I am.  Everyone at the table was watching this teachable moment.

Why not you...? Why not be the first...? Just because (hypothetically) everyone else has failed...why must you?"

Do you know...I have never looked it up. And he has never stopped trying.

In fact, last night at the dinner table he brought it up again.

"Mommy...? What do you think? I've been trying every day for so long and it just doesn't work. I don't think I'm even close to whistling.  Is it my teeth? I think it's my teeth. They just aren't in the right spots.  Or my mouth. It just doesn't work..."

Azlan always has had his emotions just right...below the surface. He looks like he's fine then he will burst into tears.

I could tell that's where he was right then.

I said "how about we ask Miss Dottie tomorrow at speech therapy."

He LIT up.

This afternoon at speech therapy he turned and whispered to me "remind me to ask about the whistling." She caught us sharing secrets and asked what :)  So I told the story.

You know...she didn't frown. She didn't miss a beat.  She said "well why not? Let's try".

And she proceeded to spend the next several minutes of therapy intensely helping him with his tongue, his lips, his air flow...to whistle.

No...he didn't whistle today. But he walked out of that office with a bounce in his step.

Knowing...absolutely knowing...he's going to whistle.

And when he does...can you imagine the celebration?

Oh yes.  The greater the obstacle...the sweeter the reward. Always.

And the lesson. For all of us. Who cares what's been done before us! Why does everyone else set the standard for what we will accomplish...? Why even know what they have done? Why not...give it everything you've got?  Even I don't want to know. So please don't write me and tell me how the odds are stacked against him.  We don't need to know that.

Tell us after the fact. After he's accomplished it. Then ... yes, then I'll research it. Not a moment before.  Right now...? Azlan is determined to reach this goal.